Public Access to Genetic Knowledge
- Is it wise to use “direct-to-consumer” genetic modification because it is not supported by the intervention of a qualified medical professional or genetic counselor?
- Should a genetically screened family member share dangerous genetic information (such as carrier status) with their children or other family members, and if so, when?
- Could such testing be used as a requirement for adoption or IVF embryo implantation, for example?
Regardless of whether a regulatory body agrees or not, consumers or entities have the right to know on something that affects them. The public's access to genetic knowledge will be very beneficial, as it could be used to make important decisions. Individuals are made aware of their genetic identity as well as any potential issues, especially regarding genetic diseases(Pollack, 2015). Therefore with this kind of awareness, they can seek professional consultation from trained medics or genetic councilors. On the other hand, it would be imprudent to provide this sort of information as it may be prone to misinterpretation from consumers. It would be miserable to have such information without knowing the way forward. It would only be wise if such details were elaborately and professionally provided.
A family member who has undergone through genetically testing should provide such information to other family members and children for cautionary purposes. The children could be carriers and healthy but when they mate their children are likely to inherit two abnormal genes. However, parents should only provide this information to children at the right time. This information is just relevant when offered to young adults as they plan to start families.
Genetic testing is an excellent method for tracing paternal roots by those who are adopted. Biological family members who have participated in adoption can be determined readily using DNA. Many family reunions have been facilitated through this procedure as they can trace their paternal roots and ancestral lineages. IVF embryo implantation has enabled the assessment of embryos to determine their genetic condition or abnormality of their chromosome. This technique has allowed maximization of healthy births as abnormal embryos can be detected and avoided in the mating process. The method has also enabled couples to conceive after suffering infertility for extended periods due to genetically instigated conditions in the families.
References
Young E. (2015) retrieved on 10 October, 2017 from. Clinical Genetics Has a Big Problem That's Affecting People's Lives. Unreliable research can lead families to make health decisions they might regret. https://www.theatlantic.com/science/archive/2015/12/why-human-genetics-research-is-full-of-costly-mistakes/420693/
Pollack A. (2015).F.D.A. Reverses Course on 23andMe DNA Test in Move to Ease Restrictions. Retrieved on 10 October, 2017 from https://www.nytimes.com/2015/02/20/business/fda-eases-access-to-dna-tests-of-rare-disorders.html?_r=0
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